Thursday, April 3, 2014

4 Months today

I can't believe that today marks Billy's 4 month surgery anniversary!
Crazy isn't it.

To be honest I feel like it has been much longer than that. It is amazing to me how far he has come in 4 months. He really is my Hero and I applaud his determination.

Monday was his neurologist appointment to go over his MRI that was taken last week. Everything is looking good. I had no doubt that it wouldn't. What was left in there is so would take forever for it to grow again. Or well...that is my professional opinion :)  Dr. Hadgipanayis was very glad to see how well he was doing. Loved how his eye was looking after the eye surgery. He didn't seem to positive about the facial paralysis but I point blank told him we were not going to give up on that and we are staying positive that it will come back.

Earlier that morning we took a trip back up to the Neuro ICU ward and delivered 30 Thirty-One Pocket A Totes that I had embroidered with the words "Believe..." and then filled with goodies. We explained to the nurses that Billy was a patient there in room 3107 4 months ago and that this was just something our hearts compelled us to donate. A bag is to be given to each family as they come in so that they will know someone is thinking about them during this tough time in their lives. The nurses were excited and they loved seeing how well Billy was doing. We even saw a familiar face while we were there. After that we headed to Floor 9 to leave Dr. Vivas her present. Just a small token of thanks for all her caring and hard work. And yep. It was a Thirty One bag She called later on that night to thank us personally and to see how the Neuro appointment went. She on the other hands thinks the small things we have seen with Billy's face is a good sign! That's why I love her...she is so positive and upbeat about things.

So we are good to go for 6 months. At that 6 months mark we will head back to Emory for another MRI and to see Dr. H and Dr. Vivas at the same time. So it will be an Emory filled day for sure. At that time Dr. Vivas said we will re-evaluate his facial paralysis and then discuss further measures. I think at that time we may talk about a hearing aid also. It will not help him hear as that part of his ear is gone, but it will help him re-route sound to his good ear. As far as the facial paralysis they are talking about connecting the facial nerve to his tongue nerve to help with some of the dropping. I'm just not sure about that personally. I love him just as he is. And if God sees fit that this is the way he should be...then who am I to question or complain. I see my love. Not paralysis. So really that ball is in his court. I am not sure he would like another surgery...I know I wouldn't. But.....I will continue doing as I have and just pray that what shall be will be. I am just happy that I have my husband with me....healthy...and happy.

Sunday, February 23, 2014

12 weeks Post Op

It's really hard to believe that in just a few days we will be at 12 weeks post op. 3 months! WOW.
I'm so proud of him for the journey he has taken and so quickly. 12 weeks ago I honestly didn't know how we would get to the next step and here we are....

Last week Billy returned to work...his first full week... 11 hour days for 5 days. And he did awesome! I knew he would be pretty tired and come Thursday it was showing on him. But he got up and went each day without any hesitation. He has spent the weekend pretty much resting up which is fine with me. Each week will be another step closer to getting his strength back for sure. Tonight we are celebrating with Omaha Steaks, chicken kabobs and veggies. Thanks to our dear friends Emily and Howard Bach!!

Billy's eye is looking better each day. There is still a little bit of an area swollen and the stitches haven't desolved totally yet (I saw one yesterday). But over all it looks good. I know he is super glad it closes and has made that part of life a little easier.

Our fundraiser has went very well. We are 20 bags short of reaching our goal of 50 bags but I am so super excited that we have raised enough for 30!  I called and got the okay with Emory to bring them to the Neuro-ICU ward in March. Now the process of filling them all and just getting them packed to go. I'm still hoping to raise enough for the last 20. The link is to the right of this blog....I haven't updated the latest donation so we are almost at $400 :) awesome isn't it :) Thank you to everyone that has made it possible.

Thanks for hanging in there with us....

Monday, February 10, 2014

Totally AWESOME!!!!

hmmmm I am thinking my kids would have a fit if they heard me say Totally! That is rather 80ish isn't.

But it is TOTALLY awesome! Today we headed back down to Emory Midtown for a Physical Therapy appointment and to see Dr. Vivas (the ENT surgeon). Physical Therapy went well. There are still a few things that are challenging for Billy but that is to be expected. I mean really...we are only 10 weeks post op so I think where he is right now is amazing. He doesn't experience too much dizziness which I think is GREAT. The balance will always be a challenge for him but I think he is doing outstanding. The Physical Therapist RELEASED him! WOOT! So one down and one more to go.

Then we headed over to see Dr. Vivas. Have I mentioned how much I love that doctor! Totally amazing and I am so glad we started this journey with her. She smiled so big when she saw Billy. The last time she saw him he couldn't eat and had pneumonia so it was a large improvement. She took a look at his face....and said hmmmmmm several times. She seems to think that she may have seen some twitching....and he has experienced some signs of tingles (almost like you have laid on your arm for too long) in his face. She says this is good. That the nerve will start firing back up and make those kinds of sensations. I have told him to not get discouraged. I really, truly, deep in my heart feel that his face function will return. It will just take time which we have plenty of :)  She was impressed with his spunk today and how ready to get to work he is. Everything looked great. Incision looks good. She stated that his stiff neck is from the muscles that they had to cut into...which I had no idea they did. Who knew you had muscles behind your ear. So the best part...she RELEASED him too!!!!

Now for the final okay.....tomorrow he heads back to the Eye Surgeon to see how that is healing. If all goes okay he will be able to return to work on February 17th!!! AWESOME!!!!! He is on cloud 9 and ready to get back to a "new normal" life. I'm very excited for him. It's been a long 10 weeks for sure but he has come so far.

Dr. Vivas did mention that after about a year IF the facial stuff does not improve that they would recommend a muscle surgery that brings his droop back up. And also a hearing aid. It doesn't give him hearing on that side but will reroute the noise so that he can know where it is coming from. Large, noisy rooms are hard for him right now. But we will see how this year goes. Our next appointment will be in March to see Dr. H, the Neurosurgeon, again and another MRI. We still have a little fraction of that pesky tumor left in there so it will consist of monitoring to make sure it is not growing. But our Emory visits are deminishing! YEAH!

I'm sure my blog posts will be slowing down....please know that I am not ignoring anyone...just not as many updates because really....he is DOING GREAT! That is a good thing. I've enjoyed reviving my blog again so I may just keep plugging away with our happenings around here. Maybe this year will bring lots of new beginnings for us :) Time will tell.

Much love and lots of hugs!